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February 28, 2014
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What is Rare Disease day?
Rare Disease Day is an annual, awareness-raising event co-ordinated by EURORDIS at the international level and by National Alliances and ... read more
What is a Rare Disease?
A disease or disorder is defined as rare in Europe when it affects fewer than 1 in 2000. read more
2018 Day Programme
On february 2018 we have multiable activites starting from 17 until 23 february read more
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2016 Day Programme
RARE DISEASE DAY FEBRUARY 2016
| ACTIVITY | DATE & TIME |
|---|---|
| Awareness lectures for the high schools &Universities students. | 21-24 February |
| The CAGS Report: a scientific report ( based on patients' true stories) | 21 February |
| Evaluation of the participating works of school students in topics related to the RDD. | 21-24 February |
| RDD Symposium in the 3rd Medical Pediatric Congress. | 25 February |
THE CEREMONY - On 26th FEBRUARY 2016
| ACTIVITY | TIMING |
|---|---|
| Noor Group | 2:00-2:10pm |
| Mini theatrical shows: participations from primary schools. | 2:10-2:45pm |
| Mira's story: a show performed by a patient & her family. | 2:45-2:55pm |
| Handing out Awards for the best short story, scientific research && artworks submitted by school students. | 3:00-3:30pm |
| The bikers parade from the Biker's Cafe to the Children City | 2:30-3:30pm |
| The horse parade in Al Riyadh Road. | 3:00-3:30pm |
| Honoring the partners & supporters. | 3:30-4:30pm |
| The Walkathon: Inside the park. | 5:00 |
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