February 28, 2014

Welcome To Rare disease - UAE

These rare conditions are lifelong challenges that only people who are either affected or directly involved in their management are aware of. The painful journey of these children and their loved ones remain an untold story behind closed doors of their homes or the hospitals. The fact that these disorders are rare, campaigns to raise awareness about them has been minimal and insufficient to shed light on the cumbersome weight they carry on their shoulder on daily basis just to stay alive.

2016 Day Activities

Rare Disease Day Booklet 2016

The booklet includes information about Rare Diseases, Genetics, Consanguinity & Genetic Disorders and Inborn Errors of Metabolism... Download

Main & Motorcycles activities

A motorcycles and bikes march organized by the Emirates Motor Sports federation and Emirates Bike federation is going to launch from Bikers Café on Jumeirah Beach Road, Jumeirah 1 passing by Children's City in Creekside Park and returned back to the starting point... Read More

Video
News
Hamdan Medical Award organizes the awareness campaign on rare diseases next week in Dubai

Hamdan Medical Award organizes the awareness campaign on rare diseases next week in Dubai

  • Feb 18, 2017

In conjunction with the Rare Disease Day 2017, which is an annual event comes on the last day of the month of February, and under the slogan "With research possibilities are limitless”,... Read More

 

16 new genetic mutations are identified as causative of 12 hereditary rare diseases among Arab children

  • Feb 15, 2017

Dr Mahmoud Taleb Al Ali, the Director of the Centre for Arab Genomic Studies (CAGS), affiliated with Sheikh Hamdan Bin Rashid Al Maktoum Award for Medical Sciences, announced that the Joint research project between CAGS and Latifa Hospital, affiliated with Dubai Health Authority... Read More

 

Hamdan Medical Award concludes its awareness campaign on Rare Diseases

  • Feb 27, 2016

In conjunction with the Rare Disease Day on February 29th, Sheikh Hamdan Bin Rashid Al Maktoum Award for Medical Sciences concluded its Awareness Campaign on Rare Diseases with a celebration held yesterday at the Children's City in Greek Park, Dubai... Read More

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