February 28, 2014
2016 UAE Rare Disease Day

Welcome To Rare disease - UAE

These rare conditions are lifelong challenges that only people who are either affected or directly involved in their management are aware of. The painful journey of these children and their loved ones remain an untold story behind closed doors of their homes or the hospitals. The fact that these disorders are rare, campaigns to raise awareness about them has been minimal and insufficient to shed light on the cumbersome weight they carry on their shoulder on daily basis just to stay alive.

2016 Day Activities

The Centre for Arab Genomic Studies’ Report on Rare Disease Day 2016

Every year at the end of February, many people across the world mark Rare Disease Day, which brings together individuals who are affected by rare diseases... Read More

Main & Motorcycles activities

A motorcycles and bikes march organized by the Emirates Motor Sports federation and Emirates Bike federation is going to launch from Bikers Café on Jumeirah Beach Road, Jumeirah 1 passing by Children's City in Creekside Park and returned back to the starting point... Read More

Video
News

Hamdan Medical Award concludes its awareness campaign on Rare Diseases

  • Feb 27, 2016

In conjunction with the Rare Disease Day on February 29th, Sheikh Hamdan Bin Rashid Al Maktoum Award for Medical Sciences concluded its Awareness Campaign on Rare Diseases with a celebration held yesterday at the Children's City in Greek Park, Dubai... Read More

 

Hamdan Medical Award launches an awareness campaign on Rare Diseases

  • Feb 25, 2016

Abdullah bin Souqat, a member of the Board of Trustees and the Executive Director of Sheikh Hamdan Bin Rashid Al Maktoum Award for Medical Sciences, announced the names of the winners of the school students’ competition on Rare Disease. “This competition is a part from the awareness campaign organized by the award on Rare Diseases from 21 till 26 February”, he said... Read More

 

Hamdan Medical Award launches an awareness campaign on Rare Diseases

  • Feb 21, 2016

Today morning, Sheikh Hamdan Bin Rashid Al Maktoum Award for Medical Sciences launched its awareness campaign on Rare Diseases. In conjunction with the Rare Disease Day, this year’s awareness campaign is held under the slogan "Join Us in Making the Voice of Rare Disease heard "... Read More

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